4. Scarlett's Journey: A Family's Battle With A Rare Disease

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Feb 28, 2024 · in 2019, two weeks after the birth of their daughter, scarlett, the alonzo family received a call from the state of georgia’s newborn screening program. The results of a blood. I thought i’d do a little introduction for all of our new followers and say thank you for your continued support!

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Scarlett has a very rare genetic syndrome called cornelia de. Mar 30, 2019 · we are here to share our story and spread awareness of this rare bleeding disorder called platelet storage pool disorder.

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